Brain Fog is a Bitch.
An ambiguous modern-day affliction.
And it’s scarier than it sounds.
Until I started talking about it, I had no idea just how many people lived with some degree of brain-fog…
Last April I got sick. Really sick. I was in Sydney teaching workshops. I couldn’t sleep. I was beyond activated. It was as though my brain had been switched “off” – and activared my stress response. Teaching was super challenging. When I got home I collapsed and could barely function. I was out for weeks. And what began was a very expensive journey, shrouded in chronic brain fog and fatigue…
It felt like my brain was only 25% online.
Eventually I surrendered to the it (not without resistance).
15 months later (last month) I was telling a friend the story:
It had been an epic year – my business was flourishing beyond my imaginings, I expanded my studio and created a gorgeous new bedroom sanctuary, wrote and built my sexy new website. I did it all in a new way – buoyed by the resiliency that consistently showing up for myself had cultivated.
So when I went down – it was a shock!
It wasn’t like the previous breakdown.
The warning signs just weren’t there.
I was baffled. Gutted.
As time went by my skin broke out (for months!) so I began to suspect my renovated bedroom had contributed. I recalled how the timber floor smelled toxic in the build and the early days. But I felt powerless to change it. By that stage I figured the worst of it was over. I became acutely sensitive to light, screens, wifi and any stimulation. Cognitively I was acutely impaired. My nervous system was hyper-vigilant. My psoas was not happy. Tired, oh so tired. Writing or comprehending a simple list or task was like rocket science. It was like I’d had a lobotomy.
So work came to a halt.
I had more conversations about brain fog than I care to remember.
Opinions and theories varied.
A year in and I was getting scared.
What was up with my brain? Was this permanent?
I grieved. I prayed. I rested…
All kinds of tests were done. I cleaned up my diet. No medical answers came. But I made some awesome discoveries and changes of my own and felt things improve a little. Daily rest and consistent sleep are non-negotiable – so I was spending a lot of time in my new bedroom.
Because I had a few serious head trauma’s as a child – and my recent symptoms felt very familiar to my post-concussion experience – I saw a neurologist and Brain Trauma specialist.
And just when I was accepting that this was my new life (functioning at about half capacity) – I told this story to a friend.
And I had a breakthrough.
My friend honed in on the part about the stinky floor (treated plywood – which I’d coated in a natural sealant), the skin, the way I knew it was a factor but blew it off as if the worst had passed. You could still smell it (in the storage on the floor under my bed) – but surely that wasn’t the cause of my brain-fog… Right?
But he said he was adversely affected by VOCs (Volatile Organic Compounds) off-gassing in toxic building supplies. He insisted on helping me move out of my bedroom right there and then. I slept in my lounge room for many weeks as I looked at my options. I sourced a special product from the US to coat the floor and seal in VOCs. (The only other option was to replace the floor.) Within 2-3 weeks of moving outa there I felt like myself again. It was such a joy! A few weeks later I coated the floor and I’m back in my sanctuary – sans brain-fog!
Even though I’d originally coated the floor in a natural/low VOC product – it had leached through and was gassing into my bedroom as I slept, rested, meditated, read in there for up to 14 hours a day… Several months of living in that and BOOM!
Oh. My. God.
This toxic time-bomb went off whilst I took care of myself!
Paradox strikes again.
Wikipedia says: “Volatile organic compounds (VOCs) are numerous, varied, and ubiquitous. Harmful VOCs have compounding long-term health effects. Because the concentrations are usually low and the symptoms slow to develop, research into VOCs and their effects is difficult.”
I hope that more research is done and that the word gets out!
I gotta say – it’s been a double-edged breakthrough. Relief and grief.
I spoke to my builder and he was mortified. He said he will never use the product again. Bravo.
I feel so grateful for this resolution. For my friend Tom.
And for all that I learned throughout my journey.
For my body’s incredible capacity to endure and heal.
My psoas and nervous system have returned to equilibrium.
And of course what I discovered is already informing and enriching my work with people.
So there you have it.
Next time I will share about some rather awesome discoveries I have made and embraced.
How to detox your life from the things that are possibly making you sick, interrupting your healing, your sleep, your life…
Please comment below if you experience/d brain fog or have a story to tell…
I love that you are here.
♡
Until next time, with unwavering love…
Hi Kylian,
Fantastic blog post! And congrats on a beautiful website too 🙂
I’ve been through something similar. I’ve spent 17 years living with severe chronic pain and fatigue and brain fog too at times, and my journey to wellness has also involved learning deep rest and how to calm my nervous system, how to clear my emotional wounding, live in my feminine, and live a profoundly balanced life of deep inquiry. I am very grateful for everything I’ve learned on this healing journey. But after coming so far and building a life I truly love, I recently found out that I have extremely high levels of mercury and lead in my body, and that they have probably been there since childhood! So at last I have an answer! I could really relate to the joy you expressed in this blog when you discovered that it was the VOCs that were causing your symptoms, and also to the depth of the journey you’ve been through. I have a 12 month detox ahead of me and I’m so excited to be at last taking the steps to heal the true cause on the physical level. (Of course these chronic conditions always have metaphysical causes too, and I’ve spent years working through those… 🙂 Yes, we live in a world now where even those of us highly committed to health are still being assailed by toxins. We can’t live in a bubble, so it pays to find as many ways to detox as possible without going into fear about it. Am sending you all my love and thanks for sharing. Love, Tahnee xx
I hear you Tahnee. What a journey you’ve had! We find out what we are made of in these circumstances hey? I know that my brain fog rolls right on back in if I over do it, push past my edge or override my nervous system. So even though the VOC’s were responsible for the onset and chronic phase – I get how it’s a litmus test for the stress response.
I wish you all the best for the coming months with your detox sweetheart. That’s my interest now too – seeing if there’s more I can do to detox VOC’s from my system and life (apart from the obvious). And yes – we live in an increasingly toxic world – and there really is no escaping it completely – unless we drop out totally and go live in a forest. And I do know some people do this – by choice and sometimes because it is the only way they can live without chronic pain or symptoms. My prayer is that I am not forced to do the same.
Being highly sensitive can be a blessing and a curse. But ultimately I give thanks because my body knows, and I trust my body. And a new passion has been born in me – to really go ‘natural’ and organic in ALL areas of my life. No more compromise. And it has also informed my work – given I am working with the nervous system. My first hand experience has provided greater insight and empathy into the complexity and possibility – that environmental toxins can and do play a role in health issues. I reckon this is the beginning of my next blog!
Much love xox
Ive suspected & this is confirmation this ive been in bali have noticed resurgence of my brain fog! driving round on scooter breathing in the fumes i think has effected me greatly.. Back to beautiful northern rivers soon for fresh air but will be more careful from now on to take more measures to not expose myself .. Deepest gratitude for sharing 💗
I hear you Bebop. Just the thought of intense fumes makes me shudder. We are so blessed here in Byron. May your homecoming be followed by clarity. ♡
WOW! Resolved or disappeared on it’s own!! I would be interested in knowing the endurance time of former brain fog sufferers!! Mine definitely diminished big style after having 2 root canals removed and then a few laters it all went but ………. So pleased that you feeling much more yourself xxxxx
Thanks Angela! Wow! Yes brain fog causes vary. Thats why it’s a little miracle when we resolve it. Thanks darling. Feeling much more ‘here’. xxxx
Thank you for your post, as you know I have had first hand experience with flooring also which was very stressful to my nervous system and immune system and also costly financially. We had to sand off a low VOC sealer from the floor of an entire house and replaced it with beeswax and carnauba. Theres some interesting info on a site called ‘my chemical free house’
Yes another similar story. We sensitives need to know this stuff!!! Did re-doing the floor do it? Thanks for the site info Ke Ao Nei – will check it out. What a journey hey? I’m feeling excited about my deepening commitment to living more naturally/organically. Was overdue…. You are an inspiration to me, so thank you. Big love xxx
Many years ago I built a house… the bedroom floor was particle board coated in a non toxic varnish. However the particle board sent my system overboard and ultimately my partner chain sawed the floor out of the bedroom and we put in a hardwood floor. After that we energy tested all the ingredients before using them. Also had a lot of trauma as an infant, and hyper sensitivity was my gift (and sometimes curse).
Oh wow! Thats a similar story Eleanor! The idea of cutting out the floor was just tooooo daunting – so I’m keen to ‘watch’ how things go. Hopefully I can avoid going there. Yes its such a gift – and can be a big ol’ challenge. Much love to you xx
Glad you have yourself back! Not the same experience to not be the real you. x
Thanks Glenn. Feels liberating. Great to be back xo
Oh wow. Great you found the cause. I wonder over how I would feel minus all the toxins and radiations and what not floating in to my system on a daily basis xxx
Yes I wonder that all the time! We are bombarded…Wifi, mobile towers, dirty electricity, plastics, VOC’s, GMO’s…. the list is exhaustive and can feel impossible for us sensitives. I wonder where it’s all headed too. Like how much can our human organism take? hmmmmmmm…… xxx
I can resonate with this – being so sensitive to any different smells. We even bought a new couch and I couldn’t get used to the smell of the fabric (as they use things on it) and we had to air it in the garage for over 6 months! The brain fog always comes for me with sinus inflammation – allergies to things and hard to get rid of of! Frustrating to live with!! I’m so pleased you found a solution to yours – I’m not surprised you were feeling unwell xx
Yes – it seems so many do! It was likely the foam off-gassing in your couch. I’m not sure I will ever buy new furniture again! Toxic bombs.
My brain fog rolls right on back in if I over do it, override my nervous system. So even though the VOC’s were responsible for the onset and chronic phase – I get how it’s a litmus test for the stress response. Frustrating is right! But I do trust my body to let me know somethings ‘off’. Just wish it could speak in a language I understood more readily… Some grief at all those months of suffering and feeling I was going mad. Thanks for your love for joining this important conversation darling. ♡
Hey Kylian,
What a fab blog post that I truly understand and my heart goes out to you it sucks having brain fog.
I have CFS & Fibro and then came the fog thicker and faster than anything I had ever experienced.. And trying to explain to people was so hard. I remember sitting at my desk in my corporate job been asked a question 3 times and just burst into to tears I had been sat at computer for hours and no information was even processing the screen just looked blurred..
I had to give up my job months later as the fog just never shifted..
I am happy to say now it’s so much better and I believe this is through huge dietary and lifestyle changes of becoming very low tox living..
Thank you for sharing with us xxxx
I had brain fog from a undiagnosed B12 deficiency (pernicious anaemia) – within weeks of starting B12 injections it totally cleared up. I feel your pain, it’s a horrible thing to go through!
Hi,
I’m new to this site and I realise the post from Triona was some time ago but I have CFS FM and MCS my doctor wants to start me on a b12 regimen but he does not know what dosage or frequency is best . I am wondering if Triona or anyone who has any experience with them can help.
thanks